In very basic terms we respect your personal information and will only ask you for what information we really need from you. We will look after it in the same way we would want ours looking after, keeping it secure. We will only share it with others where we need their help to deliver our service to you (such as using third party applications who may need your name/email address for permission management). Be assured that we will never share your information in any other circumstances – nor will we sell it on elsewhere.
THE DATA WE COLLECT
Personal Data - Here is a list of personal data we commonly collect to conduct our business activities
Contact Details (e.g. name, company name, job title, work and mobile telephone numbers, work and personal email and postal address).
Professional Details (e.g. job and career history, educational background and professional memberships, published articles).
Financial Information (e.g. bank details).
Sensitive Personal Data - As part of our core activities, we are provided with details of Human tissue that has been either donated or previously sampled as part of a medical procedure/diagnosis. In order to provide our services, we are required to store detailed records of each tissue sample. We are never provided with, or process any information that can link a tissue sample with the individual that provided it.
Personal identification details that may reveal race or ethnic origin, gender, and possibly biometric data of private individuals.
Personal medical details (e.g. disease details, age, smoking status, tumour details, medical diagnosis and treatment, etc.)
Child Data - Although we do not intentionally collect information from individuals under 13 years of age, we may occasionally receive details about children provided to us by our suppliers and clients as part of sample details.
Location-based Data - We may process geographical locations through data provided to us by our suppliers or customers.
HOW DO WE COLLECT PERSONAL DATA?
Directly - We obtain personal data directly from individuals in a variety of ways:
From individuals who provide us with their business card,
Through our online forms,
Through attendance to meetings or events,
Through visits to our offices,
Applications for open roles.
When we are establishing a business relationship
When we are performing professional services through a contract
Indirectly - We obtain personal data indirectly about individuals from a variety of sources. We may attach personal data to our customer relationship management records to better understand and serve our business clients and individuals, satisfy a legal obligation or pursue our legitimate interests.
Public Sources - Personal data may be obtained from public registers (such as Companies House), news articles and internet searches.
Social and Professional Networking Sites - If you share your social media details with us (e.g. LinkedIn, Google, etc.) or if you have permitted your social media provider to display this information publicly. That information may include your name and email address and depending on your privacy settings, additional details about you. Please review the privacy controls on the applicable service to set how much information you want shared with us.
Suppliers - Our suppliers provide us with detailed inventory of Human tissue that contains personal medical data (as detailed above). We are never provided with names or directly identifiable data of patients / donors.
Recruitment Services - We may obtain personal data about candidates from an employment agency, and other parties including former employers, and credit reference agencies
WHY DO WE COLLECT PERSONAL DATA?
We may rely on the following lawful reasons when we collect and use personal data to operate our business and provide our products and services:
Contract - We may process personal data in order to perform our contractual obligations.
Consent - We may rely on your freely given consent at the time you provided your personal data to us.
Legitimate Interests - We may rely on legitimate interests based on our evaluation that the processing is fair, reasonable and balanced. These include:
Delivering services to our clients - To deliver the professional services our clients have engaged us to provide.
Direct Marketing - To deliver timely market insights and speciality knowledge we believe is welcomed by our business clients, subscribers and individuals who have interacted with us.
Legal Obligations and Public Interests - We may process personal data in order to meet regulatory and public interest obligations or mandates.
We aspire to be transparent when we collect and use personal data and tell you why we need it, which typically includes:
Providing professional advice and delivering reports related to our professional services.
Promoting our professional services, products and capabilities to existing and prospective business clients.
Sending invitations and providing access to guests.
Personalising online web pages and communications.
Administering, maintaining and ensuring the security of our information systems, applications and websites.
Seeking qualified candidates, and forwarding candidate career inquiries to our People team.
Processing online requests, including responding to communications from individuals or requests for proposals and quotations.
Travel arrangement assistance.
Helping to connect suppliers and researchers.
Complying with legal and regulatory obligations relating to countering money laundering, terrorist financing, fraud and other forms of financial crime
WHICH THIRD PARTIES DO WE SHARE PERSONAL DATA WITH?
We may occasionally share personal data with trusted third parties to help us deliver efficient and quality services. These recipients are contractually bound to safeguard the data we entrust to them. We may engage with several or all of the following categories of recipients:
Cloud-based software services - E.g. our business applications for finance management, customer relationship management, website, etc.
Our professional advisors - E.g. Accountants
Payment services providers
Recruitment services providers
Law enforcement or other government and regulatory agencies (e.g. HMRC) or to other third parties as required by, and in accordance with, applicable law or regulation
DO WE TRANSFER YOUR PERSONAL DATA OUTSIDE THE EUROPEAN ECONOMIC AREA?
We store personal data on our cloud-based software. Some of these applications store data outside of the European Economic Area (EEA). Each organisation that provides these applications is required to safeguard personal data in accordance with our contractual obligations and in full compliance with data protection legislation (e.g. GDPR and EU-US Privacy Shield).
WHAT ARE YOUR DATA PROTECTION RIGHTS?
Access - You can ask us to verify whether we are processing personal data about you, and if so, to provide more specific information.
Correction - You can ask us to correct our records if you believe they contain incorrect or incomplete information about you.
Erasure - You can ask us to erase (delete) your personal data after you withdraw your consent to processing or when we no longer need it for the purpose it was originally collected.
Processing Restrictions - You can ask us to temporarily restrict our processing of your personal data if you contest the accuracy of your personal data, prefer to restrict its use rather than having us erase it, or need us to preserve it for you to establish, exercise, or defend a legal claim. A temporary restriction may apply while verifying whether we have overriding legitimate grounds to process it. You can ask us to inform you before we lift that temporary processing restriction.
Data Portability - In some circumstances, where you have provided personal data to us, you can ask us to transmit that personal data (in a structured, commonly used, and machine-readable format) directly to another company if is technically feasible.
Automated Individual Decision Making - You can ask us to review any decisions made about you which we made solely based on automated processing, including profiling, that produced legal effects concerning you or similarly significantly affected you.
Right to Object to Direct Marketing Including Profiling - You can object to our use of your personal data for direct marketing purposes, including profiling. We may need to keep some minimal information to comply with your request to cease marketing to you.
Right to Withdraw Consent - You can withdraw your consent that you have previously given to one or more specified purposes to process your personal data. This will not affect the lawfulness of any processing carried out before you withdraw your consent. It may mean we are not able to provide certain products or services to you and we will advise you if this is the case.
We may need to request specific information from you to help us confirm your identity and ensure your right to access the information or to exercise any of your other rights. This helps us to ensure that personal data is not disclosed to any person who has no right to receive it. No fee is required to make a request unless your request is clearly unfounded or excessive. Depending on the circumstances, we may be unable to comply with your request based on other lawful grounds.
HOW DO WE KEEP YOUR DATA SECURE?
We have put appropriate technical and organisational security policies and procedures in place to protect personal data (including sensitive personal data) from loss, misuse, alteration or destruction. We aim to ensure that access to your personal data is limited only to those who need to access it. Those individuals who have access to the data are required to maintain the confidentiality of such information. We may apply pseudonymisation, de-identification and anonymisation techniques in efforts to further protect personal data.
If you have access to parts of our websites or use our services, you remain responsible for keeping your user ID and password confidential. Please be aware that the transmission of data via the Internet is not completely secure. Our website uses Secure Socket Layer (SSL) technology when information is submitted to us online.
HOW LONG DO WE RETAIN PERSONAL DATA?
We retain personal data to provide our services, stay in contact with you and to comply with applicable laws, regulations and professional obligations that we are subject to. As a result of business need or specific legal, regulatory or contractual requirements, where we retain personal data in accordance with these uses, we retain personal data for a minimum of seven years.
DO WE LINK TO OTHER WEBSITES?
We will respond on the same day to inquiries made during standard (EST) business hours. If you don't hear back quickly, please try again and double-check your email address is entered correctly and whether our reply has been sorted into your spam folder.
Normal skin pieces
Post mortem skin pieces:
- Skin piece source: whole body donors
- Anatomical site: all anatomical sites are available, including scalp, breast skin, abdominal skin, patella skin & all others
- Skin specimen formats:
- fresh skin samples in the buffer or medium of your choice or on ice
- frozen skin specimens
- fixed skin samples in 10% NBF
- Skin piece sizes: all sizes
- Donor ages: mostly 60+
Diseased skin specimens
Post mortem donor samples:
Melanoma tumor samples and normal skin pieces from post mortem donors, any site, any size. Skin samples plus metastatic skin tumor samples from other organs are available. Melanoma donors are a rare population amongst our post mortem donors.
Tissue sample formats:
Frozen, fresh in the buffer or medium of your choice or on ice, or fixed in 10% NBF.
Clinical donor samples:
Metastatic-site-only melanoma tumors are also available from clinical donors.
Tissue sample formats:
matched FFPE blocks, frozen tissue aliquots, serum, plasma and buffy coat from each donor, where available.
Diabetic leg ulcers, pressure sores and other chronic wound tissues are regularly available from post mortem donors.
Tissue sample formats:
Fresh, frozen or fixed in 10% NBF.
Please note: these skin samples are only available for research purposes. The skin specimens we work with are not approved for in vivo, clinical or transplant use. Unfortunately, we can not accept or register skin specimen donors directly; please contact your clinician or hospital who will be better placed to provide advice regarding how to donate skin samples for research locally- thank you for considering this option.
Heart disease state samples available:
Via our partner clinical biobanks we can provide a wide range of diseased-heart tissue samples.
We can provide, from biorepositories or prospective tissue collections:
- Normal donor hearts (post mortem only)
- Cardiovascular disease tissue specimens, as well as whole hearts and blood vessel biosamples from heart disease donors, including:
- aortic valve stenosis
- cardiac atrophy
- heart bypass operations
- coronary/other calcification
- cardiomyopathy (ischemic and non-ischemic cardiomyopathy, dilated cardiomyopathy)
- coronary fibrosis
- heart failure
- ventricular assist device placement
- cardiac infarction
- cardiac inflammation
- mitral valve (Myxomatous degeneration, myxoid degeneration, fibrosis, cardiac valvulopathy, severe mitral regurgitation, Nodular myxomatous degeneration of cardiac valve,
- myocyte nucleomegaly
- myxoid degeneration
- pacemaker placement
- papillary fibroelastoma (rare)
- heart transplant rejection (rare)
- sarcoidosis of the heart (rare)
- stent placement
- heart wall thickening
Clinical tissue donors:
A wide range of cardiovascular diseases, including those listed above, are available from our clinical tissue donor partner sites. Clinical donors range in age from their 20s (rare) to 80s.
Clinical tissue sample formats:
Samples are often available with FFPE, frozen tissue, plasma, serum and buffy coat available from the same donor, with pathology details and extensive medical history & follow-up information.
Post mortem tissue donors:
Post mortem donors are mostly aged 60+. The shortest interval between death and sampling is 3 hours, but such donors are rare, and increasing the window to 8 or more hours will greatly increase the number of donors available to study.
Post mortem organ/ tissue sample formats:
Whole hearts, cardiac tissue samples and vascular tissue samples are available fresh, frozen or fixed in 10% NBF. A pathology report is not available, although specific clinical reports, such as details of heart-related operations, may be requested.
Organ/ tissue sample types and sizes:
Working with our partner post mortem donor facilities, we can provide:
- whole hearts
- arteries from any location, including the carotid artery, aorta, pulmonary artery
- veins from any location, including carotid vein, pulmonary vein etc
- any surrounding tissues
- a range of heart diseases, such as those listed above
- normal hearts
Please note: these organs and tissue samples are only available for research purposes. The heart specimens we work with are not approved for in vivo, clinical or transplant use. Unfortunately, we can not accept or register potential specimen donors directly; please contact your clinician, hospice or hospital who will be better placed to provide advice regarding how to donate. Thank you.
Brain, dura, skull, spine/ spinal cord, neural cell clusters/ ganglia and CSF are available, as may specific nerves / neuromuscular junctions. Please note that the gut is also particularly rich in neural tissue, and is reported to share certain CNS characteristics, if you would like to examine another set of nerves for comparison.
Brain tissue can be shipped fresh, frozen, in 10% NBF or FFPE - please see below for an explanation of availability, depending on the tissue type.
Brains from neurologically normal donors, as well as from donors with neurological diseases, can be provided whole or can be provided sectioned.
Tumor tissue types:
Brain tumor samples, such as glioblastoma, glioblastoma multiforme (GBM) and astrocytoma are already banked in our partner clinical biorepository tumor brain banks.
The amount of normal tissue available from clinical donors is naturally small, if there is any available at all, due the the need to minimize any unnecessary tissue damage.
There may also be abcess, cyst or blastomycosis samples available (these are all very rare) or other infections of the CNS, where CSF collection is required for diagnosis.
These brain tumor tissues are available as FFPE sections or FFPE blocks, or as frozen tissue aliquots. These samples are from clinical donors, and usually have matched FFPE, frozen, serum, plasma and buffy coat from each donor.
CSF may be available, for conditions where this needs to be removed for diagnostic analysis & some is surplus to diagnostic requirements.
Post mortem brain & other tissues
Central Nervous System (CNS)
- including brain & spinal cord, as well as the skull & spine/ particular vertabrae.
Peripheral Nervous System (PNS)
- including the Somatic Nervous System (SoNS) and the Autonomic Nervous System (ANS) (sympathetic & parasympathetic systems) tissue samples
Normal brains and brain tissue samples / other nervous tissue samples can be banked for you prospectively, as well as brains from donors with stroke, dementia, Alzheimer's, Parkinson's Disease & other diseases, although donors with degenerative diseases do not present regularly. We collect prospectively according to your specifications, rather than operating a standing brain bank.
Post mortem interval:
The shortest possible time between death and brain tissue or other neural tissue removal is approximately 3 hours, but donors will be available much more frequently if you can go up to 12 hours or more between death and neural tissue removal.
Brains and brain samples are available fresh, frozen or fixed in 10% NBF. Tissues may be frozen whole at -80, flash frozen in liquid Nitrogen, or flash frozen in liquid Nitrogen vapor. The brain can also be sliced at 1cm intervals on a teflon-coated Aluminium plate and frozen in liquid Nitrogen vapor, in order to maximize the tissues' utility for histology. We will always do our best to facilitate any processing requests - please contact us to discuss further.
Please note: apart from brain tumors specimens from clinical donors, we do not routinely bank brains or other CNS samples in specific brainbanks. This is because we usually prefer to collect specimens prospectively so that they meet your exact requirements in terms of post mortem interval, storage & shipping, donor gender, age, disease & treatment, as well as clinical data required.